Author Topic: Cold and facial muscle recovery  (Read 4423 times)

Tod

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Cold and facial muscle recovery
« on: December 14, 2010, 10:02:16 pm »
Okay, I'm right at 10 months out. I suffered left-side facial paralysis for a couple of months post-surgery and then experienced a fairly rapid progress to something like 85% of apparent normal. I have stayed there since, and few untrained or inexperienced individuals will notice any deficits unless I am really tired. Or if I try to act really surprised.

However,in the last couple of months I have noticed my left side facial muscles more and more. I am more aware of the effort of talking or moving my face. I feel it more, especially in the cold. In fact, out running tonight in 22F, I could certainly feel the cheek muscles on eyelid struggling with the cold. I'm not really sure how else to describe this.Also, I should note that on my last camping trip with scouts a couple weeks ago, my cheek was having difficulty getting out of the way while eating and there has been few more instances.

I am interested in knowing from others how familiar this sounds to your recovery. Of course, part of my problem is the continued difficulty in talking which really compounds the effort of making my face work and I have had to do a lot of talking lately.

So, any thoughts? Oh, and I am not complaining, life is pretty sweet right now.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Cheryl R

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Re: Cold and facial muscle recovery
« Reply #1 on: December 15, 2010, 09:57:47 am »
Tod, you are probably feeling some tightness in the muscles.     The cold does make that worse also.      I have problems with this.     Try putting some kind of warm pack on it and see if that makes a difference.      Also the stand by exercise of putting your thumb inside your mouth and with the fingers pull across one area that is tight several times and then go to the next area and do the same.     This is a Jackie exercise and helps loosen a tight area.       She says do it 3 times a day.                  Can try and see if this makes a difference to you.                           Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Tod

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Re: Cold and facial muscle recovery
« Reply #2 on: December 15, 2010, 10:06:18 am »
Thanks Cheryl, that makes sense...stretching would be a good idea.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

free2be

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Re: Cold and facial muscle recovery
« Reply #3 on: December 15, 2010, 11:27:58 am »
Cheryl,

Is there some place to get more information on that stretch or massage move? I am having trouble with the trigeminal nerve since the CK (and yes, cold is a major ouchy though thankfully I don't have motor problems and I bought a little moon shaped microwavable heat pack that I put in my hat and scarf before going outside. It helps).

Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

Cheryl R

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Re: Cold and facial muscle recovery
« Reply #4 on: December 15, 2010, 12:47:11 pm »
I was told this by Jackie as did a half day visit a year after my first AN.           There is a website that is www.bellspalsy.ws        There is a section on exercises.                    This site was going to be down due to the death of the person who ran it and then heard it was back but I thought under a different name.     I just checked and it is there as I wrote above.   
                                               Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

free2be

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Re: Cold and facial muscle recovery
« Reply #5 on: December 15, 2010, 01:01:12 pm »
Thanks, Cheryl. I got it.
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

Debbi

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Re: Cold and facial muscle recovery
« Reply #6 on: December 21, 2010, 07:30:00 am »
I use the same facial stretches Cheryl wrote about (I am also a Jackie Diels alumni).  You need to be diligent about doing them several times a day, but they can easily be done while watching tv or other passive activity.  Moist heat is also great.  Another thing that helped me was to take the ball of my cheek (under eye, over cheek bone) and gently squeeze it between my thumb and fingers of the opposing hand.  You can try some gentle twisting motion, too.  The only time I have tightness now is when I am tired, stressed or really cold.

Happy stretching!
Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com