Actually, there is an old discussion thread on this, but since it's old, I guess I'll start new. This is my first post.
I had cyberknife treatment at Kaiser, SF in August, and was doing very well until a month ago, when the AN side of my face began grimacing violently for 15-30 seconds at a time, a couple of times a day.
The only treatment being offered is Decatron, which I cannot tolerate (and wasn't completely controlling the spasms, anyway.)
My oncologist believes this is a temporary stage post-treatment, and I'm choosing to believe her, and try to stay relaxed.... but
I'm a singer, a teacher, and currently enrolled in a certification course in Sound Healing.
At first, it was merely mortifying and frustrating when my face would start to grimace while I was performing. I try to breathe through it.
In class this past weekend it became absolutely clear to me that the vibrations of my singing/chanting actually set off the grimace. It makes sense to me, since the center of the tumor has been liquefied by the radiation, as described by my oncologist. (Anyone who's interested can look up Cymatics in images to see the amazing things that happen when you send sound vibrations through liquid.)
I'm frustrated and upset because singing has been an important means of maintaining my sanity. And it's also a source of income for me. Life is hard enough without this!
Also, while my oncologist dismissed my initial question about whether the MRI could have irritated the tumor -- the facial spasms began about 5 days after my 3 month follow-up MRI -- I suspect it is not merely a coincidence, since the MRI involves a sonic barrage as well.
So. Trying to remain calm. But I'd appreciate any information folks may have collected on the effects of vibration, including MRI, on AN, and those who may have explored alternative approaches, since I can't tolerate the medication being offered.
Thanks for being there!