The results can be accessed by clicking the download link below. It begins with an Executive Summary, pages 4-9, and the complete results can be found on pages 10-75. The table of contents is on page 3.
We would like to thank all of you who completed the survey and sincerely hope you will help us continue our efforts to develop a "living database" that will provide valuable information to all existing patients, as well as those who will be diagnosed in the future. Finally, we would like to thank all of you who continue to support the ANA as it is that ongoing support that makes projects like this possible.
In 2012, two online surveys were designed to collect data from new patients and from individuals who responded to the 2007–2008 survey. Emails requesting participation in a revised Initial Contact survey were sent in November 2012 to 2,731 patients who visited the ANA website since the 2007–2008 survey closed.
Emails were sent to an additional 1,272 people who responded to the 2007–2008 survey and who had valid email addresses. Reminder emails were sent four times until mid-January 2013. Responses to the Initial Contact survey were received from 1,150 individuals; 1,015 were usable.
Open the Doc Below to view the survey.