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History

Acoustic Neuroma Association (ANA) was founded in Carlisle, PA in 1981 by Virginia Fickel Ehr, who had microsurgical removal of her large acoustic neuroma in 1977. Before and after surgery, she experienced significant neurological deficits. She sought information about acoustic tumors; information which could be understood by the layperson. Since her search was unsuccessful, she made a commitment to making available appropriate information to those who followed her in their acoustic neuroma experience.

With assistance from a number of leading surgeons and patient volunteers, ANA was incorporated in 1981. During her decade and a half of ANA leadership, Ginny contacted thousands of acoustic tumor patients and worked for the association's growth in services and numbers. In addition she wrote patient-perspective articles for medical journals and spoke to both patient and medical groups in the U.S. and Europe. She retired as President of the Board of Directors of the association in 1992 and now serves at President Emeritus. Ginny continues to be a resource to ANA and participates in ANA symposiums.

Since the founding of ANA in 1981, thousands of patients, family members, friends and health care professionals have received comprehensive and non-technical information about acoustic neuroma. Pre- and post-treatment information is provided in our quarterly newsletters, patient information booklets, our website, symposiums and local support groups.

Take a few moments, and view this great video celebrating ANA's 25th Anniversary:
ANA 25th Anniversary Historical Video created by Stonefield Productions - Ellen Rankart (13.6 MB)

Click here to read about the Acoustic Neuroma Association History from 1981 - 2007 by Sallye H. Anderson.  Sallye was treated for an acoustic neuroma in 1974 and became a member of ANA in 1984.  She served on the Executive Board in 1986 as Secretary for six years.  In 1992 she was elected President of ANA, succeeding Ginny Fickel Ehr, founder and first ANA President, relocating the association to Atlanta, GA.  She served in this position until 1998 and then served on the Board of Directors as Past President until 2003.

Click here to read about the Acoustic Neuroma Association History from 2007 - 2011 by Agnes Garino.  Agnes was treated for an acoustic neuroma in 1996 and has been a member of ANA since then.  In 1997 she attended her first symposium in Dallas, and has attended each symposium since.   She was elected to the Board of Directors in 2001, serving as Vice President in 2003 and 2004 and elected President  serving from 2005—2008.  She is currently serving as the Immediate Board President.

Acoustic Neuroma Association is a 501(c)(3) organization funded by member dues, donations, gifts and grants. An audit is performed annually and is on file at the national office.

Acoustic Neuroma Introduction

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